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The officiating minister, Pastor Ituah-Ighodalo, who had lost his wife some hours before the burial, was calm throughout the service. Save my name, email, and website in this browser for the next time I comment. Notify me of follow-up comments by email. Notify me of new posts by email. This site uses Akismet to reduce spam.

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November 5, am. Sorry, your blog cannot share posts by email. You must be actively involved. Your child should promptly take all prescribed medicines. Parents should follow up with any recommended specialists to check for complications.

The child should be helped to avoid pain crisis triggers, such as extreme temperatures or stress. It has been a year since you lost your son, Ayodeji Akinwande. How has it been with you? Losing a child is a sorrowful thing. Only God Almighty can comfort you! What were the steps you took upon discovering that he had sickle cell disease? We began the treatment immediately, but it was a long and tortuous journey, especially seeing him in pain, as a result of the crisis.

Would you consider his status an act of negligence from you his parents, being his dad and mum? Oh yes. I strongly admit. I want others to learn from my experience and invariably hope my experience will help save the lives of yet-to-be-born babies worldwide by teaching couples to embrace prenatal medical tests. Were there assurances from doctors that your son was going to survive the disease? The truth of the matter is that sickle cell disease can only be managed for as long as the patient can endure, and suffer the crises.

There are certain rigorous activities that SCD patients must not indulge in. These activities can trigger a crisis for the sickle cell carrier. Doctors only try their best. It is so expensive that it can actually deplete the financial fortunes of a family that has an SCD patient if care is not taken. The financial costs of managing an SCD patient cannot be quantified in the life span of the patient.

The disease worsens over time. You can only prevent complications and lengthen the lives of those who have this condition via certain treatments. What will be your advice for people who are planning to get married and have children? People should go for medical tests before starting a family. For example in advanced nations like the United Kingdom UK , health professionals encourage awareness of sickle cell traits and early testing.

The import of having these tests before having babies is that you will know whether or not there is a possibility that your babies could inherit SCD.